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SQUIRRELY 2005-01-18 18:56:59

MRI fine, nothing seen there.
So that must mean the brain is gone too. Probably is.

Thryoid ultrasound sending me back to the endo the same endo that has done
nothing to help me.

So there we have it. Once again nothing done. What a waste of time and
energy. They are never going to do anything so why don't I get that in my
thick skull.


--
Love and hugs to all
Good thoughts coming your way too.

Squirrely Jo




ARCHER 2005-01-18 22:49:49

SqJo,

What a major change in events. You'd written about joking w/docs &
others, happy with their care, that going to appts was your social life
(I could relate)... what happened.

I wish you wouldn't put yourself down (the lack of brain comment).

Isn't is good news that the MRI was fine. Sorry you have to see an endo
you apparently don't like. Are you very pro-active with him? What is
the endo supposed to be looking for?

Seems they did run tests. If what they were looking for is not there,
isn't that good news?

I presume you have a PCP who is aware of symptoms you're experiencing.
Either there isn't an answer or they don't know what other tests to
order.

I'm really sorry you're upset. What is it exactly you want them to do
that they are doing nothing about?

Hope your mammogram was fine.

Love, Jo

Tue, 18 Jan 2005 Squirrely wrote:
>
> MRI fine, nothing seen there.
> So that must mean the brain is gone too. Probably is.
>
> Thryoid ultrasound sending me back to the endo the same endo that has done
> nothing to help me.
>
> So there we have it. Once again nothing done. What a waste of time and
> energy. They are never going to do anything so why don't I get that in my
> thick skull.
>
> --
> Love and hugs to all
> Good thoughts coming your way too.
>
> Squirrely Jo



JOHNIE 2005-01-18 20:56:17

{{{{squirrely jo}}}}, one of these docs has to figure this out. too many
specialist in this formula. what you need is a brilliant diagnostician.
someone needs to lay out all the pieces and get a handle on the big
picture. it seems you may have all the data you need. now you need one
really smart doc to take the time and solve this puzzle.
hang in there kiddo. it is so frustrating but there has to be some
answers here...somewhere.

johnie

Squirrely wrote:
> MRI fine, nothing seen there.
> So that must mean the brain is gone too. Probably is.
>
> Thryoid ultrasound sending me back to the endo the same endo that has done
> nothing to help me.
>
> So there we have it. Once again nothing done. What a waste of time and
> energy. They are never going to do anything so why don't I get that in my
> thick skull.
>
>




BBETTS@WEBTV.NET (B B) 2005-01-18 23:27:24

I feel for ya gal!! It feels like you're beating your head against a
brick wall sometimes, doesn't it? If only you could walk in and say
"This is what's wrong with me and this is the test I want run to prove
it to you." I'm able to do that, in a round-about way, with my PCP
sometimes, but then I have a hard time getting him to follow through. (I
was the one to tell him I wanted the cholesterol and cardio inflammatory
lab tests. He wouldn't have run them if I hadn't come out and ask for
them.)

Is there any chance that you can go and request specific tests like
this? Maybe you could do some research what your problems are and figure
out what might show up on what test.

Get that chin up and don't give up...ya hear?!

squirrely@tekrealm.net (Squirrely) wrote:

MRI fine, nothing seen there.
So that must mean the brain is gone too. Probably is.

Thryoid ultrasound sending me back to the endo the same endo that has
done nothing to help me.

So there we have it. Once again nothing done. What a waste of time and
energy.

They are never going to do anything so why don't I get that in my thick
skull.

~*~Barb~*~TOO!



RENé 2005-01-19 06:01:37

For crying out loud!!! After all you've been through, and they can't find
anything that is causing all your problems! I'm so sorry, SJ! What
frustration you must be feeling!

All you can do is just keep pluggin' along, huh?

Well, I'm praying that you'll find the best plugs ever! :)

Take Care!

René
Royal Mess



"Squirrely" wrote in message
news:10urk94f534hrfc@corp.supernews.com...
> MRI fine, nothing seen there.
> So that must mean the brain is gone too. Probably is.
>
> Thryoid ultrasound sending me back to the endo the same endo that has

done
> nothing to help me.
>
> So there we have it. Once again nothing done. What a waste of time and
> energy. They are never going to do anything so why don't I get that in

my
> thick skull.
>
>
> --
> Love and hugs to all
> Good thoughts coming your way too.
>
> Squirrely Jo
>
>





VASHTI 2005-01-19 19:58:16

Squirrely wrote:
> MRI fine, nothing seen there.
> So that must mean the brain is gone too. Probably is.


{{{Squirrely Jo}}}

> Thryoid ultrasound sending me back to the endo the same endo that has done
> nothing to help me.


Check out these MSN groups:
http://groups.msn.com/pituitarytumor
http://groups.msn.com/pituitarychat

There are really helpful people there(I'm only really familiar with the
first but the second may be busier) who know stuff like what kind of MRI
it's best to have and maybe someone can even give you an idea of what
your blood results mean if you have them. I've also seen recommendations
for an endo so someone might know a good pituitary specialist in your area.

> So there we have it. Once again nothing done. What a waste of time and
> energy. They are never going to do anything so why don't I get that in my
> thick skull.


Oh, Jo! I know just what you feel like: that dull sense of hopelessness
when you seem to reach a dead end, I had the same thing when my periods
first disappeared and the hormone test came back normal... I'd thought I
had early menopause just like my mother did. It's horrible when you feel
something isn't right and you can't get the answers! :(

Please don't give up on yourself, ok? Check out those two groups, ask
for ideas, post the results of your blood tests... maybe someone there
can help you. I have also heard(ok, _seen_) a few people mention
idiopathic prolactinemia: high prolactin without a visible tumour, I
think they were also treated with Dostinex like I am, but I could be
mistaken.

This doesn't have to be a dead end Jo, you _can_ regroup and look for
answers again.

{{{Jo}}}


Vashti


SQUIRRELY 2005-01-19 18:25:56

will answer all posts as soon as I can. am sick, pain, etc so as soon as I
can will get answers to you all. ;-)


--
Love and hugs to all
Good thoughts coming your way too.

Squirrely Jo

"Archer" wrote in message
news:41EDD8DD.E6D6F827@privacy.net...
> SqJo,
>
> What a major change in events. You'd written about joking w/docs &
> others, happy with their care, that going to appts was your social life
> (I could relate)... what happened.
>
> I wish you wouldn't put yourself down (the lack of brain comment).
>
> Isn't is good news that the MRI was fine. Sorry you have to see an endo
> you apparently don't like. Are you very pro-active with him? What is
> the endo supposed to be looking for?
>
> Seems they did run tests. If what they were looking for is not there,
> isn't that good news?
>
> I presume you have a PCP who is aware of symptoms you're experiencing.
> Either there isn't an answer or they don't know what other tests to
> order.
>
> I'm really sorry you're upset. What is it exactly you want them to do
> that they are doing nothing about?
>
> Hope your mammogram was fine.
>
> Love, Jo
>
> Tue, 18 Jan 2005 Squirrely wrote:
> >
> > MRI fine, nothing seen there.
> > So that must mean the brain is gone too. Probably is.
> >
> > Thryoid ultrasound sending me back to the endo the same endo that has

done
> > nothing to help me.
> >
> > So there we have it. Once again nothing done. What a waste of time and
> > energy. They are never going to do anything so why don't I get that in

my
> > thick skull.
> >
> > --
> > Love and hugs to all
> > Good thoughts coming your way too.
> >
> > Squirrely Jo





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