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Re: MED: Vitamines and Minerals
2005-08-08 17:04:24
Hi Marjorie :-)
Yes. Your way is complicated :))) but, sounds "correct" :-) I admit that it was so complicated that I need your mail two or three times. For now I learned Vitamin/Mineral should be decided depending on what kind of medication (main course) you take, such as you take fludrocortisone and midodrine for your NMH: Neurally Mediated Hypotention (right?). I hope my doc will start up prednisone as soon as possible (close agents of fludrocortisone). And, this seems to become the "main course" of mine. Mean, I have to adjust the vitamins/ minerals for the prednisone. How to find the "clue" to find the "fit vitamins/minerals"? Did you research the medical interactions and such? (...too complicated for me to deal with though...) Or do you simply go to the nutritional doctor? I wish I have some knowledgeable nutritional doctor here. (If there were, they must expensive though). But, anyway, I want to find "right" Vitamins/Minerals for tuning my condition and medication. I don't want to be killed by the long term use of prednisone. CFSers have lots of knowledge and hints to cope with any kinds of diseases. OK. I prepare my mind for lots of studying. In the mean time, please have a good rest! I will reply more later, after digesting them! Hugs, Rika ps. If you are abnormal CFS patient, then, I am weird CFS patient ahimsa wrote: > Well, this was very long-winded, huh? I guess it just keeps > on reminding me that I feel like an "abnormal" CFS patient. > I often think maybe I "only" have NMH (which is plenty bad > enough, thank you very much, LOL!) and I don't have "ME/CFS" > (whatever that turns out to be).
2005-08-09 07:14:52
Hi Marjorie,
You give us very practical information all the time :-) -- I translated your surgery information to Japanese a couple of years ago. (was on the same co-cure.j ) I believe I got your permission. Old story ! > 5 (or more) salt tablets (Thermotabs brand) > 600 mg magnesium glycinate (helps with muscles) > B-complex (mostly for B-12, since I'm almost vegan) > 1000 mg C vitamin (general health - placebo, probably!) > potassium (prescription, time released) > - Be careful with potassium, I take it under doctor's > care, because I'm also taking fludrocortisone & salt I don't have any knowledge about Vitamins/ Minerals. OK. I see at least, Magnesium, Vit B-complex and Vit C seem to be essential. (...I remember that Vit C has been studied again and again. But, still Vit C is "alive". Means, "for general health" is good enough reason to count...) Your potassium and salt tablets are for NMH and/or your orthostatic intolerance. (...this part is "individual adjustment", right?...) So, now I can say "try the one for general health BUT be careful for the ingredients. As long as you are allergic to many chemical substances". The another key word seems to be "Chemical allergy". (...Multiple Chemical Allergy...). ...Please correct me when the above summarized theory was wrong... > > I also take midodrine (a vasoconstrictor) and fludrocortisone > (a mineralcorticoid steroid) daily, and a migraine medication > as needed for pain. I'm probably missing something but that's > what I can remember off the top of my head. OK, I also can say "try the basic idea thought to be good for CFS". "Then, I (or every one) add to adjust each individual symptoms and condition" (including each individual medication environment). > > I realize that this is long and complicated but I hope this is > helpful. Great help :-) Let's hang in there. Big Hugs, Rika CFS since 1979, 15 yo. RP since 1995, 31yo. ps. Hope I won't scare you. But, why not RP from CFS, while some RP from FM??? "Three of them" (RP, CFS, FM) have common points: "problem of immune system". MORE, "the multiple chemical allergy" is involved. It is clear enough to me that CFS is the problem of immune system. Or, all are just "coincidence" ??? |
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