|
Plea To Eliminate The "F" Word
2004-01-20 19:39:01
~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Send an Email for free membership ~:~:~:~:~:~:~:~:~:~:~:~:~:~:~:~:~:~:~:~ >>>> Help ME Circle <<<< 21 January 2004 Editorship : j.van.roijen@chello.nl Outgoing mail scanned by Norton AV ~:~:~:~:~:~:~:~:~:~:~:~:~:~:~:~:~:~:~:~ From: Dewey Ewing Via: CO-CURE@LISTSERV.NODAK.EDU Comments to: dbell005@rochester.rr.com Comments: cc: LEFields@OSOPHS.DHHS.GOV, DNichols@OSOPHS.DHHS.GOV, wcr1@cdc.gov, cfids@cfids.org, kim-kenney@cfids.org Plea To Eliminate The "F" Word In CFS ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Dear Dr. Bell, Like countless other's, I have held you in high regard as a pioneer and expert on CFS. Recently, I read various posts which state that you too find the name Chronic Fatigue Syndrome a poor and degrading choice. Since you've seen and treated hundreds of CFS patients, you probably have heard many expressed frustrations. No doubt, many of these frustrations result from the medical profession's unwillingness to accept CFS as being something other than a psychological illness. This illness is simply not taken seriously by the medical community or society, largely due to it's degrading name. Many practitioners do not want to deal with this illness and chose not to get involved with CFS patients. Until more definitive markers are established, most doctors will not risk treating us. This leaves patients with a "guilty" (until proven innocent), conviction. We are constantly crying out for validity, but more often than not our cries fall on deaf ears. Patients often have extreme difficulty's obtaining disability benefits, despite our inability to work. Parents are held in question when their afflicted children present with this illness, despite their deepest compassion and desire for their child's well being. Patients lose social contacts and are viewed as psychological misfits. I believe the medical community has now been adequately informed about this illness, at least to the point where little more education will sway mindsets. Most practitioners now have their own beliefs as to whether this illness is (or is not), psychological in origin. If you do not believe CFS is a psychological origin based illness, then surely you feel the urgency of getting more research dollars channeled towards establishing definitive physical markers and pathogen identifications, other than towards graded exercise or cognitive behavioral therapies, especially for those of us afflicted with severe cases of this illness. You are now in a position to effect change to this hideously misnamed illness. I believe a name change is the first step towards bringing positive changes to get better funding and acceptance for the illness. I strongly urge you to reconsider, and take a stronger stance to support the tireless efforts of those already generated in getting the name changed. Please do not let this opportunity slip away. Too much time has elapsed and too much suffering has occurred, to dismiss this issue at hand. For those of us who have fought for positive changes, our hopes are being dashed with the blatant dismissal of making this name change a reality. Thank you for your reconsideration, Dewey Ewing ~~~~~~~~~~~~ |
video kredyty pozycjonowanie kredyt na samochód free bingo |
